Cystic fibrosis benefit to aid transplant
Published 10:37 am Wednesday, June 8, 2016
Friends and family of Peyton Gill are hosting a benefit Saturday to support the family in the coming months.
Gill, 14, has cystic fibrosis and will eventually need a double lung transplant. The benefit with food, games, music, raffles, silent and live auctions is an effort to raise money so the family can afford a place in Houston when the time comes for the transplant.
Askew’s Landing Campground, 3412 Askew Ferry Road, will host the benefit from 11 a.m. to 6 p.m. Saturday. Admission for individuals is $5, couples are $10 and families are $15.
Hamburgers, hot dogs, beer and crawfish from T’Beaux’s Blues La Roux will available for purchase from 11 a.m. to 2 p.m.
“The rest of the afternoon is pretty much playing, you know having a good time,” Gill’s mother Brandie Cook said.
The children can spend time outside jumping in bouncy house and running through an inflatable obstacle course, but the fun and games aren’t just for the children, adults will be able to participate in a corn hole tournament and games of horseshoe.
Arts and crafts booths will be setup so vendors can sell their handmade items in addition to raffles and auctions.
If the weather holds out there will also be swimming, and Gill’s aunt Amanda Caldecott said a lifeguard would be on duty to keep everyone safe. The camping fees associated with staying at the landing will also be donated to Gill’s family. Both Caldecott and Cook gave owner Dan Askew a lot of credit for his help in planning the event.
Cook hopes there is no rain, but also that it doesn’t get too hot because heat is hard on Gill.
Gill was diagnosed with the disorder that causes blockage in the lungs and digestive system at 3 months old. Currently he has function on one and a half lungs.
“They will re-evaluate at the end of the summer and add him to the transplant list,” Caldecott said. “From there they will have to stay in Houston until his name is called from the list because they have to be within an hour of the hospital at all times.”
She said it could take weeks or years. The transplant will help Gill by relieving him of breathing treatments and therapy so he can breathe easier, but he will have to take medication for the rest of his life to help prevent his body from rejecting the lungs.
“He’ll be able to live a normal life,” Caldecott said.
The family is currently selling their home in Utica and living with family in Brandon to be closer to Blair E. Batson Hospital for Children in Jackson. Cook’s husband works at Ergon in Vicksburg. The family is waiting for an appointment in Houston in October to determine when Gill and Cook will leave for their extended stay in Texas.
“He’s already been board approved for a transplant when we went to Houston in February, and its just pending on us coming and Peyton’s health,” Cook said. “They said the longer he keeps his original lungs the better.”
She said Gill has been working hard and spending time in the gym working with a personal trainer, a family friend who is a Marine, on his strength to make him strong enough for surgery.
“When we went back again in May, they were very surprised at how well Peyton’s done,” Cook said. “He’s kept his lung functions up to par and this is the longest time he’s gone without being admitted into a hospital. Usually we were going in every 6 to 8 weeks for 14 to 21 days. He hasn’t been in the hospital since January.”
Currently Gill is homeschooled, but if all goes well with the transplant, he should be able to go back to school and would like to play golf.
Cook is thankful for everyone who is working to provide for her family through donations, time and support.
To make a camping reservation, call 601-852-2331. For more information, follow Team Peyton on Facebook or visit New Lungs for Peyton on gofundme.com.